The MANTRA for Winning Cancer Battle
H.S. Kulkarni
Edited by
J.S. Pant
Published by
– An Imprint of Prism Books Pvt. Ltd
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BSK II Stage, Bengaluru - 560 070.
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© H.S. Kulkarni
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Total Pages : 168
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Cover Picture : Aurora Borealis a rare naturally occurring
atmospheric phenomenon, forms the backdrop to the
title of the book, symbolising the Mantra at work.
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Waiting for permission to republish from Author, Editor & publisher as mentioned above/elsewhere
Glad to inform that the Author Sri.H.S.Kulkarni has permitted to republish his Book in this Blog today 17Th Noveamber 2022 by a E-Mail through my friend Sri.J.C.Pant who is the Editor of the Book.
S K G RAO
Blogger took up to take the Mighty Surviver of Cancer and just by reading this book we can drive away cancer from anywhere on the Globe.
17th November 2022.IST 18:12 PM.
DEDICATED TO MY WIFE NALINI, my ‘SAVITRI’
A vast intention has brought two souls close
And love and death conspire towards one great end.
For out of danger and pain heaven-bliss shall come,
Time’s unforeseen event , God’s secret plan.
This world was not built with random bricks of Chance,
A blind god is not destiny’s architect;
A conscious power has drawn the plan of life,
There is a meaning in each curve and line.
It is an architecture, high and grand
By many named and nameless masons built
In which unseeing hands obey the Unseen,
And of its master-builders she is one.
SRI AUROBINDO in ‘SAVITRI’
ANANYA’S FAITH
Washed over by dread. He sat in that dreary room
“What is it Doctor?” Forehead beaded with sweat.
“Sir, it’s Cancer” he said. The walls closed around him.
Time seemed to have stopped. “What is to happen now?”He thought.
He was welcomed home by an array of tears. With people engulfing
him with pity and fear,
For his well being, They offered to pray.
Unsure of how long he was here to stay. From his loved ones he grew
distant.
Unable to convey, Just how much he missed them.
Eaten by sadness, he could not display. For the sake of his people,
Strong he must stay. Each month, was another goodbye,
Haunted by the thought That, today he may die.
At the end of it all, He was greeted with sweet relief.
A result of his perseverance, And constant belief,
He had won his battle, Succeeded in his fight,
No matter what complications he’d face,
He knew his future was bright.
My little darling grand daughter Ananya.
Part One.
Key Contributory Factors for Combating &
Conquering Cancer with Conventional Treatment as
the MANTRA
The author of this book does not dispense medical advice or prescribe
the use of any technique as a form of treatment. The intent of the
author is only to offer information of a general nature to help you
in your quest for emotional and spiritual well-being. In the event
you use any of the information in this book for yourself, which is
your constitutional right, the author and the publisher assume no
responsibility for your action. The views and opinions expressed in this
book are the author’s own and the facts are as reported by him, which
have been verified to the extent possible, and the publishers are not in
any way liable for the same.The Blogger goes by the same Terms and conditions.
Contents.
Foreword
Author’s Last Word First.
Chapter 1 : Listen to your Body :
Undiagnosed fever till it recedes,
but a new symptom erupts ................................... 1
Chapter 2 : At last, the visible signs in the onset of cancer........ 8
Chapter 3 : Initial diagnosis of cancer :
How cancer is viewed and perceived ? ................ 12
Chapter 4 : Seeking 2nd opinion: final diagnosis
of cancer ; Eventually looking for
treatment at Bangalore........................................ 23
Chapter 5 : Fitness and suitability tests
before going in for Chemotherapy
modality of treatment ........................................ 31
Chapter 6 : Bracing for the
crucial chemotherapy.......................................... 37
Chapter 7 : Facing & overcoming typical side
effects or unusual complications
during the remaining Chemo cycles ................... 44
Chapter 8 : The Joy of Conquering Cancer,
by finally attaining Complete Remission............. 51
Chapter 9 : Key Contributory Factors for
Combating and Conquering
Cancer with Conventional
Treatment as the MANTRA ............................. 56
Chapter 10 : Paying Obeisance and Expressing
Gratitude to Family Deity
and Guru Raghavendraswamy for
new Lease of Life and Preventive Care................ 64
Chapter 11 : Moving on, pursuing and
embracing new life, post remission ..................... 67
Chapter 12 : Transformative Journey of Cancer
Battle Winner for Guiding Others in
Containing and Managing Cancer
with Hopestar MANTRA, supported
by illustrative cases ............................................. 77
Annexure I : Signs and Symptoms of Cancer........................... 90
Annexure II : Chemotherapy demystified and explained......... 101
xi
Foreword
H.S. Kulkarni, aged 75, an engineer cum executive and entrepreneur
of Dharwad, was diagnosed as having Non-Hodgkins Lymphoma
Cancer Stage 3-A in August 2011. He races and wins the cancer battle
in less than a year, not with just chemotherapy, and taking alternative
modality of treatment after remission and for preventive care, but due
to sheer fortitude and the power of his mind. I had the occasion to hear
his story of winning the battle against cancer at a National Seminar on
Management of Cancer held in Bangalore on 22 Sept. 2012, where I
delivered the Concluding Address. It is gratifying to know that he has
since completed 5 years, being free from cancer, after attaining total
remission.
In his unorthodox style, Kulkarni has written his cancer story in this
Book form cataloguing his trials and tribulations before and after being
diagnosed as having cancer. He subsequently tells how he underwent
the crucial chemotherapy and follow up treatment to manage and win
cancer with contributory factors as the ‘Mantra’, while exploring and
ultimately finding reliefs from alternative medicines.
For the transformative journey from a cancer battle winner to
guiding others for combating cancer, Kulkarni studied, tested and tried
various complementary and alternative medicines in addressing cancer
cases. Armed with these alternative modalities of cancer treatment, he
has eventually come out with ‘Hopestar Mantra’ for containing and
managing cancer. Thus, this Mantra has enabled Kulkarni to provide
new hope to the cancer stricken in improvement and recovery.
Incidentally, among the books or material written on the subject
matter by cancer survivors and others, H.S. Kulkarni’s book stands
apart as one providing the Mantra for alleviation, relief and winning
the cancer battle. I am happy to recommend this book as a good read,
and practical guide to every person concerned with or affected by
cancer.
-Professor B M Hegde,
MD, PhD, FRCP (Lond, Edin, Glasg, & Dublin), FACC, FAMS
Cardiologist & Former Vice Chancellor, Manipal University.
Author’s Last Word First
Cancer has been a Blessing in Disguise to Me !
The cancer that I was diagnosed with, and eventually overcame
after treatment, taught me some lessons. For, I went through the trials
and tribulations as a cancer patient under conventional or mainstream
medicine ; took the critical Chemotherapy treatment, and ultimately
attained complete remission. While I suffered silently and helplessly
from collateral damage caused by the side effects and after effects of
chemotherapy, I experienced the devastating impact of cancer treatment
on me physically, mentally and even financially.
Then, I did not consider it worthwhile to merely write my experience
as a cancer patient in the form of book, just to declare that
I won the cancer battle.I believe, and I am certain, every cancer
patient who has undergone similar treatment modality or other modalities
of treatment, comes out of the Hospital with the same feeling and
traumatic experience.
The question that came up is “Whether cancer treatment can be made
tolerable, affordable and less rigorous or probably moderate in terms of
acute pain and suffering ?” I had no clue or inkling of such possibility
while I was undergoing preventive care for two years after complete
remission. However, it is during this crucial period that I found the key
contributory factors as the Mantra under conventional medicine for
combating and managing cancer.
In pursuit of this compassionate cause, I came to know of the
health benefits of holistic science, and particularly alternative medicine.
Accordingly, I decided to try the many known, recommended
alternative medicines, including healing foods and herbs on myself.
Simultaneously, I reached some of my known cancer affected people to
try out these alternatives. When I found the results were encouraging
and positive, I came out with a Recipe or Hopestar Mantra for
containing and managing cancer. It is the revelation of the ‘Mantras’
under conventional as well as alternative medicine for combating and
managing cancer that prompted me to start writing and compiling
them in the form of a book.
This Book, aptly titled as “The Mantra
for Winning the Cancer Battle”, catalogues my experience as Cancer
Patient, Cancer Survivor, Cancer Fighter and as Hony. Cancer Guide
(HCG) to the cancer affected persons. I must say it has been a turning
point in my journey, as cancer patient to cancer survivor and fighter,
for helping people contain and manage cancer with this Mantra. Thus,
the Cancer I got has been a blessing in disguise to me.
A word about the Mantra under Alternative Medicines. It is simply
called the Hopestar MANTRA, which outlines the steps, the processes
and the protocols envisaged therein. This Mantra has been applied,
tested and tried on a number of cancer patients with favourable
outcome and results. The Hopestar Mantra is described and detailed in
Part Two of this Book.
In having come out with the Mantra for combating and managing
cancer, and written this book cum practical guide, I like to share the
credit with my friend, philosopher and guide Mr. J.S. Pant. What
material I had shown and given to him was a mix of chaff and clean
grain ; a mix that had to be nicely segregated for bringing out the
book. Without his meticulous editing, suggestions and professional
inputs, this book may not have come out in the shape and form it is.
In fact, I wanted and earnestly requested Mr. Pant to be a co-author
of the book, but he politely declined. I cannot thank him adequately
for his enthusiastic involvement and contribution to making this
Book possible.
I thank my friend and colleague Mr. A.P. Kulkarni for putting
me in touch with Dr. S.R. Kulkarni of Delhi, who was working on
ayurvedic alternatives, and for introducing me to the acknowledged
Vaidya Narayan Murthy of Narasipura, whose name is synonymous
with specific herbal barks he offers as therapy for various diseases and
symptoms. I am grateful to Dr. Shyamsunder Joshi and Dr. Shanta
Joshi of Bangalore for sharing with me the versatile health benefits
and efficacy of Simarouba herb, which I invariably recommend to the
cancer affected.
To my wife Nalini, who evolved as my Savitri, I am beholden and
grateful to her forever for having brought me back from the jaws of
death, when I suffered the attack of Herpes resulting from the collateral
damage caused by the cancer non- Hodgkins Lymphoma. I am equally
thankful to all my Care Givers, from wife Nalini to son-in-law Vijay,
daughter Arati, son Raju, daughter in law Madhu ; and my sweet little
grand daughters Rhea, Ananya and Tanvi for being with me most of
the time and propping me up in my long and arduous journey as a
cancer patient to a cancer fighter.
Finally, for the support and suggestions through the gestation and
publication of this Book, I am grateful to Mr. Pranesh Siravara of
Prism Books Pvt Ltd.
Akshaya Tritiya Day, 2017
Dharwad H.S. KULKARNI
Chapter 1
Listen to your body : Undiagnosed fever
till it recedes, but a new symptom erupts
Having settled down in Dharwad after completing my
innings as a professional engineer in industry for the
past 25 years, I thought we could relocate for a short period.
Accordingly, I moved out along with wife Nalu (Nick name
of Nalini) in early 2008, to a new work life and location in
Bangalore, and to be with our daughter Arati and her family.
Come June 2008, I began getting low fever every day evening
lasting about two hours from 6.30 pm to 8.30 pm. However,
upon sweating profusely, the fever used to recede. On consulting
Dr. Ramesh of Apollo Hospital, who, after carrying out a few
blood tests, thought it might be due to stress and pollution.
But his medication did not have any effect, and the fever
kept on coming every day evening at a near fixed or scheduled
time. This got Dr. Ramesh in a Catch 22 situation. Accordingly,
he advised blood culture examination and tests, which made
me a regular visitor to Religare Pathological Lab, next to our
house at Vignan Nagar. After a few more tests, Dr. Ramesh
told me I had urinary infection, and advised me to consult a
urologist.
2 The MANTRA for Winning Cancer Battle
I decided to see Dr. Dubey, a Urologist at Manipal Hospital. Dr.
Dubey did my uroflow test, but did not find any evidence of urinary
infection. He, however, advised sonography test of my bladder. The
scan indicated growth of prostate, but said there was no infection, since
the PSA level was within reference range. Hence, I was advised to
consult a Physician.
This left me rather confused. When I went back to Dr. Ramesh
at the Apollo Hospital, he refused to do my further check up, saying
that he had done 100 % testing, but to my surprise, he suggested that I
undergo surgery for prostate enlargement, which even Dr. Dubey, the
Urologist had neither suggested nor advised. I did not understand why
he said so, but I remained silent. Just did not know what to do next, and
where I should get my health condition finally checked and diagnosed.
Meanwhile, the scheduled fever came regularly every day.
Something is not alright
After a gap of some days, I decided to approach the Manipal
Hospital again for tests by a General Physician. There I was advised
to take a digital X ray of my chest to rule out the possibility of TB or
Pneumonia, though I did not have even the minute symptoms of either
of these diseases. The X Ray I took on the advice of Manipal Hospital
doctors did not indicate anything, much less TB or Pneumonia.
Thus, the diagnosis was becoming curiouser and curiouser, leading to
nowhere.
In the meantime, my father, who had completed his 100th birthday,
and was living with us in Bangalore since August 2008 passed away due
to advanced age, and deterioration in his health. As per our customs,
I had to perform the obsequies for 13 days, which I did despite my
continuing stubborn fever. It was only after completing all the rituals
related to my father’s death, I reverted to reviewing my health condition,
which by then had become fever chronic.
For want of diagnosis by General Physician and Urologist, I was
feeling like a football being kicked around. I was moving from pillar
H.S. Kulkarni 3
to post without knowing what was the actual diagnosis arising from
my fevers.
Eventually, I again approached Manipal Hospital for a total body
check up. They did PSA, complete blood tests, and nuclear scan of my
whole body, but again the result said everything is OK, as usual. My
body was not at all ready to tell the reason for the everyday fever that
I was getting.
As a last resort, I approached Dr. Maiyya, a reputed senior Doctor
at his Jayanagar Hospital in the hope that he may arrive at a definite
diagnosis. I went to his Hospital where all the tests including blood
tests and sonography scanning were carried out once again. The Sr
Urologist there certified in writing that there was nothing wrong
with my urinary system, but did not tell the cause of my regular daily
fevers.
Dr. Maiyya opined that though the reports were clear, a trace of
minor infection was found in the urine, and the continued fever could
probably be due to an unattended urinary infection. I was thus back to
square one. All this had left in my mind the difficulty and uncertainty
in knowing what this incessant and regular fever meant. Nonetheless,
I said nothing and remained calm, as before. I was ready and confident
that I would fight whatever my fever or health condition is ultimately
diagnosed as.
I returned to our home at Vignan Nagar without any explanation
about my health issue and any definite diagnosis. And without knowing
what may be the cause of my fevers, I told my better half Nalu that let
us go back to Dharwad. I started blaming Bangalore for its pollution,
and told daughter Arati and son-in-law Vijay that since Bangalore
climate didn’t suit me, I would prefer to go back to Dharwad, and try
my luck there. As decided, we finally moved to Dharwad. We felt happy
and relieved to be back in our sweet home ‘Aashraya’.
After a week or so, I decided to meet our good old friend
Dr. Nadkarni, who was our family doctor for the past 15 years.
He had attended to, and treated my parents, as also our children, and
knew our body well. He read all my reports, and heard my detailed
fever story. Then he advised that I better see our good friend Dr.
Raviraj Raikar, a Urologist at Hubli.
Body gets alright on its own
By prior appointment, I went to meet Urologist Dr. Raikar the
following week, and gave a detailed report of my health status, and
all the tests carried out. He read all the medications I was taking, and
he saw the remaining tablets I had carried with me. He was literally
shocked to see the bundle of tablets I was swallowing daily, not knowing
for what they were. Putting aside all the tablets, Dr. Raikar asked me
to forthwith stop all the medications, and told me that he was giving
me some fresh medicines instead, which would just cost Rs. 5/- for
5 tablets, and instructed me to take them one each for the next 5
days. He further told me if I felt OK, I need not revert to him, and in
case I did not get any relief, I could call him up, and seek his advice.
Miraculously, and with God’s grace, those five tablets did the trick,
and with the disappearance of fever, and possibly urinary problem, my
health returned to normal.
After we came back to Dharwad, and upon feeling good and fit,
with whatever treatment I had from our family doctor, I was settling
down with my work of US firm business, and interacting daily with
our staff.
Being away from Dharwad for nearly two years, our house
‘Aashraya’ was in disrepairs, and not in good condition, particularly
after the tenant had left it some months ago. So, we had to refurbish
and renovate our house. We were seized of this work, and the house
was soon getting a good facelift in tandem with my health. Days were
passing by without any problems, and I was feeling alright as before
with my work load.
Wanting a break or change from the huge work of reconditioning
and renovating our house, which took us a little over 3 months’ time,
H.S. Kulkarni 5
My wife Nalu and I decided to go for a couple of days to Bangalore, and
spend holidays with our grandchildren. It was Diwali season, and we
celebrated the festival in Bangalore with gaiety, sweets and fireworks.
We had planned to return to Dharwad thereafter. We were preparing
to leave Bangalore on the evening of the 6th day. In the morning that
day, while shaving, I noticed a small gram sized hard spot on my left
cheek. The razor was stalling at one point. I thought of sharing this
matter with Nalu.
At this point of time, I recalled when I was about 29 years, working
in a small factory at Dharwad years ago, I had a small lump on my left
thigh, and I was feeling uneasy. I had then approached Dr. Kamalapur
Sr., our factory doctor, who saw and felt the site of lump growth on
my left thigh. The lump size was about 25 mm. He even moved the
lump sideways, and understand its condition. Then, he told me not to
get unduly worried, as it was a regular lipoma fat cell accumulation,
usually occurring in males.
That reminded me of a similar lump on my father’s thigh, and
I thought it may be genetic. Till the age of 64 years I had some of
these types of lumps all over my body, but there was no cause for any
concern. Having had so many lipoma fat cell points over my body
in the past, there should not have been any worry, but my mind was
telling me to share this matter with Nalu, without waiting further. It
was all the while lurking in my mind, but I kept my fingers crossed till
we reach Dharwad.
The very next day after we reached Dharwad, and after my daily
shave, I walked to the kitchen, and said to Nalu that there is some
small hard spot on my left cheek, and it’s bothering me for the past
three days while shaving, She touched the hard small gram size spot,
and laughingly said : “Oh ! all over your body you have bigger lumps
of such kind, but you are bothered about this small one, and said you
unnecessarily get worried over such small matters; this is normal like
other lumps on your body; take it easy, and get ready for breakfast”.
6 The MANTRA for Winning Cancer Battle
Over the next two weeks, though something within me was telling
me to get it checked. After waiting for another week, I approached Dr.
Nadkarni again one fine morning, and told him about the hard spot on
my left cheek. At the end of his initial examination, he said for definite
that this was another lipoma fat cell lump, similar to the ones on my
body. Further, he asked me not to worry, but told that if the lump grew
in size in three months, I should check with him.
Three months passed by, but there was no appreciable growth of
the gram size lump, much less any pain. However, when I checked
with Dr. Nadkarni and reported him of no growth, he gleefully said,
“See that is what I told you, but you are getting unduly perturbed.
When you already have so many supari size lumps on your body, why
should you get disturbed by this small one. If it were to grow slightly
bigger, you may grow beard to cover it up, if you are so concerned
about your looks”.
Suspected growth on cheek turns out benign
But the monkey was not ready to get off my back. I was often
thinking about this small lump. Another two months passed, though
there was no issue of the Lumpy Gram, but my mind was not at peace.
So, I went to Dr. Nadkarni again, and requested him to refer me to a
good surgeon. He agreed reluctantly, and mentioned to me about.
DrKaulgud, the highly regarded surgeon in Dharwad town, and spoke to
him on phone in my presence, explaining the growth of a gram sized
lump, which was known as lipoma fat cell that I had developed, and
requested him to do whatever is possible to have my doubts removed.
Next day morning I visited ‘Lady of Lourdes Hospital’, which is
popularly known as “German Hospital” at Dharwad, to see and consult
Dr. Kaulgud for diagnosis of my gram sized lump on my cheek. Dr.
Kaulgud examined it, and said that the growth was the lipoma fat cell,
and nothing more.
After a fortnight or so, not being fully satisfied, I went to Dr.Kaulgud
again, and requested that a biopsy be done. I had sought it on my own,
and without asking or consulting anybody. It was something that my
mind was prompting me to go through this procedure, and clear my
doubts.
Dr. Kaulgud, though initially reluctant, agreed to carry out the
biopsy procedure the very next day. I informed about this to Nalu, and
told her that I will drive to the Hospital, and be back home after the
procedure.
But my office colleagues did not want me to go alone, and
accompanied me to the Hospital in the morning. Dr. Kaulgud did the
biopsy by giving local anaesthesia, and once it was over, I walked out
like a normal person.
Next day was very crucial, as the biopsy report was expected from
the Lab. We all reached the Hospital, and Dr. Kaulgud called us in to
show the report, and read it aloud that the mass taken out from my
cheek for biopsy was benign, and advised me not to worry. We were
all happy and relieved as everything was alright, and my mind was free
from the doubts and anxiety of past nine months.
8 The MANTRA for Winning Cancer Battle
At last, the visible signs in the onset of
cancer
I was readying to go over to Bagalkot with my family for the
Shastabdi function of my brother-in-law. Still there were some
days left, and the growth of my small lump started showing.
The gram sized lump, that is how I used to call it, was growing
in size. And within a few days, it started looking like a mango
slice. I was looking somewhat embarrassed and worried, but
most people kept on saying that since it is benign, I should not
bother at all about its size.
Going by the common perception and traditional belief,
‘any growth in the body if tampered with, gets hurt’. And starts
re-growing with vengeance ! It is precisely that was happening
in my case. In medical terms, it is said that the “mass within
the lump mutates, and grows”. I find this picture and possible
scenario somewhat baffling.
I went with Nalu to Bagalkot, and reached the Hotel, which
was reserved for us. I called daughter Arati, who had also come
there, to have a look at the Biopsy Report, which said the lump
growth was benign, though it had grown quickly after the
Chapter 2
H.S. Kulkarni 9
Surgery. Looking at the report and my growth on the cheek, she also
opined that this might be like other lipoma fat cells all over my body.
She said “Don’t worry, daddy”, it is just benign.
Everyone was enjoying each other’s company at the function
amidst different poojas, celebrations and delicious foods. I was sitting
alone at the end of the line on the lunch table eating some dishes
and food items, but my mind was restless due to the enlarged lump
on my cheek. Most of the family members, relatives and known
persons were wondering at my inexplicable silence, as I was not
in my usual elements : talking, chatting and interacting. At last, the
function in the day got over, which was followed by entertainment
to all.
Next day, we returned to Dharwad. It was just routine and usual
in all aspects the whole of the week. Thereafter, the days passed off
without any incidence or fuss. A week after that I started getting
pain in my ear with a ringing sound. Maybe, it was due to the aging
process, I thought. As for the lumpy growth of mango slice size, I had
reconciled to living with it, except having to tell about it to known
people and new faces.
At last, I decided to consult ENT Specialist Dr. Uday Kumar
Grampurohit, whose Clinic was located at the busy mid market in
Dharwad town. On the day he examined me, he said that there was
some wax accumulated in my right ear, which he removed and cleaned.
Then, he prescribed a few medicines. Thereafter, he did audiogram of
both the ears, and stated that except for some minor issue with my
right ear, everything was okay.
While we were chatting about my short stay at Bangalore, and my
work with the US business firm that I was doing, he accidentally noticed
the mango slice sized lump on my left cheek. He then enquired about
it, and said the growth is near to the left of my parotid gland. I said that the growth had been there for almost a year, when Dr. Kaulgud had
done the biopsy, and stated that it was benign. Dr. Uday Kumar told me.
10 The MANTRA for Winning Cancer Battle
The respected Dr. Kaulgud so much that he said ‘When Kaulgud Sir has
done biopsy, then there can be nothing to comment upon’.
However, as a precautionary measure, Dr. Uday Kumar said it
would be better that I get the lumpy growth condition tested again.
He further said “we have a Pathology Lab in this set up, and his wife
Dr. Vandana is the Pathologist”. He told me “why don’t you come
tomorrow, and get the test done”. I did not have anything to say since
the lump on the neck had somehow grown in the meanwhile, and
hence I agreed to take the test.
I decided to go the next day to Dr. Uday Kumar’s Pathology Lab
for the test he recommended. Dr. Vandana Grampurohit arrived at
the Lab post noon, and said that she would do the FNAC test. She
then drew out some fluid from the lump site with a long fine needle,
and looking at the fluid drawn, she remarked that the report will be
available in 2 days.
Thereafter, I tried to contact Dr. Vandana Grampurohit, as advised
by her, for three consecutive days, but she was not attending to my calls.
That made me somehow curious. After waiting for a week, I called
Dr. Uday Kumar but he gave me a vague reply. He said the detailed
report was being discussed by his wife with the senior doctors at SDM
Hospital, Hubli, to which she was attached.
I could bear no more the strange silence, and decided to barge
into the Clinic of Dr. Uday Kumar. The next day I went to Dr. Uday
Kumar’s Clinic, driving the tedious route, and walked to his place. I
waited for him, like other patients who had come. As he arrived, he
broadly smiled at me, and went into his room. After a few minutes he
called me in. Then, he started talking about the weather, my work and
everything else, except the report. I thought that he was avoiding to
tell, or share with me something that I could not take; maybe I’ll get
perturbed or be alarmed.
I became curious at his strange silence. I finally took a deep breath,
and decided to open the topic myself. Mustering courage, I asked him
about the Lab Report : Doctor, “what is in the report” of FNAC Test;
he was silent. Then I asked him a bit loud, “Doc, tell me” what is it : Is it cancer ? Is it malignant ? “Please do not hesitate” to tell me, if it is so.
Dr. Uday Kumar was stunned to hear the word ‘cancer’ from me. He
promptly said : Kulkarni, you have uttered what I was hesitant to tell;
how did you guess that; you are indeed very strong and courageous;
and ultimately told ‘Yes’. He clearly said ‘ You have got cancer’. We
need to wait till the next day, when the detailed report would be
made available.
Initial diagnosis of cancer : How cancer
is viewed and perceived ?
The initial diagnosis was out; and it was unbelievable. True,
the small gram sized lump had become big enough to
be known as cancer, and was malignant. What kind or type of
cancer it has been and what stage it is, will be known once the
report is available. Instantly, there was a sort of blur in my eyes
due to the impact of this news. I became emotional, and felt like
screaming; but soon realised that I was in a Clinic, and I tried
to collect myself, and regain my composure, while returning to
normalcy. I immediately picked up enough courage to ask for
a glass of water, which was provided. Then, I got up and started
walking to the exit door for reaching home.
After the unexpected news of my having cancer, an unusual
and strange silence pervaded my mind. I was lost in thoughts,
and remained mum as well as motionless. I was trying to
understand my mind, which was all the while prodding me
during the last two years to do something.
I had hardly imagined that a gram sized or trivial lump on
my cheek would one day grow big enough to derail my health
condition, and consume me. That I was a cancer candidate
Chapter dawned on me when Dr. Uday Kumar responded to my question
by stating, “Yes, it is Cancer”.
I really did not know what cancer was or meant, although I had
seen the cancer affected from a distance, and heard about it in hushed
voices. As it is, people did not have courage / confidence to talk freely
about it.
The word or name cancer is dreaded by almost everyone. It brings
out a scary and frightful picture. So much so, that it is another name
for death or life’s end. The term is an anathema, and strikes fear in the
minds of people. Not just this. It is compared to issue of a warrant for
life’s last journey, probably an RAC rail ticket to death as destination.
No treatment is said to cure it, no hospital tells when a cancer patient
will return to normalcy, and nobody says that the destination can be
changed.
Incidentally, many people hesitate, and are even scared to tell or
utter the word cancer, not only by those who are concerned with
or affected, but also by common people. I believe, it is an indicator
that the life of cancer patients gets just extinguished prematurely or
faster. In the course of last three decades, I had known that snake bites
and heart attacks used to cause instant death or persons affected by
such attacks do not survive. Today, while snake bites are easily treatable, though not so prevalent, heart attacks are common, and easily treatable or manageable. But regardless of cancer survivors, the fear of imminent death arising from the dreadful cancer lingers on.
Not merely that. Cancer name or term has now become synonymous
with, or is attributed to, any catastrophe or disaster or dangerous trends in the region or in the society by political leaders, high society peopl and even intellectuals, which in reality is neither appropriate nor fair. I cannot reconcile to such a view or perception that the word cancer is so hated or feared, and has become a taboo.
Looking back, I had vaguely heard of my mother’s younger sister and elder
brother who stayed in their villages having cancer symptoms, but did not know.
14 The MANTRA for Winning Cancer Battle
much about the disease. In course of time, I came to know that they fought the
cancer battle, and have eventually survived.
However, I had known personally my close colleague Arvind Kulkarni’s
aunt, who had cancer of a very rare kind many years ago. Those days people
thought that the patient must not know that he or she has cancer. But Arvind’s
aunt was a strong willed person. She knew that she had the rarest type of cancer
right from day she was diagnosed.
It was Arvind’s son who while sitting on his aunt’s lap pointed out towards
a ball like growth on her thigh. She had ignored it, but in the course of normal
check up, Dr. Hebbal informed Arvind to get the growth examined. He got his
aunt thoroughly examined, and the tests were done so fast that within two days
it was found and diagnosed as a rare cancer.
Arvind took courage and informed her about this slowly and softly. But the
reaction from his aunt was rather surprising. She responded “Yes, is it cancer ?
Whatever type it is, maybe it will take my life sooner or later. I will live happily,
as long as I am alive, as I have nothing to worry about; she informed Arvind
to take care of his uncle in case the cancer consumed her. She informed everyone
who visited her that she has cancer, and her days are numbered. She assigned
all her family responsibilities to Arvind, and advised him that he was absolutely
free to take any decision about her treatment plan.
The case of Arvind’s aunt was unlike mine. It took about two years
to correctly and finally diagnose that I had cancer. And that happened
only after an ENT Surgeon Dr. Uday Kumar, while examining my ear
condition accidently noticed a lump on my cheek, and enquired about
it. I told him of the FNAC test done by senior Surgeon Dr. Kaulgud at
Dharwad a year ago, but it was finally diagnosed and confirmed that the
growth is benign, and benign only, with advice that there is no cause
for any concern. Dr. Uday Kumar, however, was of the considered view
that it was preferable and advisable to go in for a fresh test.
Incidentally, Arvind’s aunt was finally operated at Dharwad’s Sarvamangala
Hospital. Arvind and I were at the Hospital when the surgery was done, not
knowing how serious was the damage caused by her cancer. When the door of
H.S. Kulkarni 15
OT opened, and Sr. Surgeon Dr. Kulgod came out, followed by a nurse with
a plastic pot carrying the operated and separated flesh portion, and showed the
mass to Arvind and me, it was deep red and some grey black semi-fluid about
three kg mass, and we did not know why so much flesh was removed. Dr.
Kulgod told us that the spread out was so much, and all this mass needed to
be sent to Bangalore for biopsy, to know and confirm the extent to which the
cancer had spread.
Arvind’s aunt was still unconscious, but after a few hours, she gained
her consciousness when smilingly she informed us that the dirt of cancer was
removed, and we need not worry. Great, I thought. Instead of our having to
comfort and counsel her for having confidence and courage, it was she, in her
semi conscious state, who told us not to worry. That reaffirmed my belief how a
strong willed person can make a difference. I must say that she is a brave lady,
who not only came out of cancer, winning the tough battle, and living happily
and free from cancer, with her husband.
All these scenes were coming before my mind’s eye when I was
mechanically driving back home from Dr. Udaya Kumar’s Clinic.
Whom and how I should inform first ? Arati or Nalu ? Not knowing
how they would react ? I decided to stop the vehicle for a moment
on the road and think. I pulled the vehicle to one side. Tried to collect
myself, but could not imagine what their response or reaction will be
like. Eventually, I decided to talk to Arati first, as she was comparatively
a strong willed person like me. I called Arati’s number from my mobile.
Hello Beta, how are you ?
OK Daddy, was the response from her.
Did you all have your lunch ?
Yes, daddy, kids are upstairs, and Vijay has gone out on some work.
Arati, I was with Dr. Uday Kumar Grampurohit for my ear check
up, and I got a report just today.
What report ! Hope, everything is OK
Yeah !
16 The MANTRA for Winning Cancer Battle
But listen.
Listen carefully till I complete.
She was a little perturbed as to why I was talking like this, but said
yes in silent mode.
Listen Beta, I was coming here for more than a week now for my
audiogram and hearing test.
Is the audiogram OK ?
Yes, but some thing else is wrong slightly
What ?
Incidentally, his wife Dr. Vandana being a Pathologist, was instructed
to take my FNAC test for the growth on the left parotid gland.
She said what ? She was perturbed that something wrong must be
revealing in this pathology test report; maybe, she guessed.
The report says that the lump growth is malignant, and Dr. Uday
tells that I have cancer.
The news may have jolted her as there was stony silence. I said
Hello, Hello repeatedly; but there was no answer. I wanted to make
sure that she is OK.
Then I continued : Beta, suno, I am OK, let us wait and see; you
don’t have to get unnecessarily upset; we can talk about it.
I have so far not informed this to your Mummy. Infact, I am on my
way home; once I reach home, let me see what to do.
Arati said, I am OK Daddy; you take care of yourself, and take care
of Mummy. I will speak to Vijay and come back.
I said OK.
My daughter Arati was the first person after me in our family to
know that I have cancer.
I started the car, and began driving home. The drive in normal
time is about 10 minutes, but this day it looked as though the time had
H.S. Kulkarni 17
stopped, and those ten minutes appeared like an hour.
I reached home, slowly walked up to the door, and half– heartedly
rang the bell. My wife Nalu opened the door.
No sooner I entered our house, and sat down, she first asked me
“What has happened, you took so long to get the report; is the report
dawned on me when Dr. Uday Kumar responded to my question by
stating, “Yes, it is Cancer”.
I really did not know what cancer was or meant, although I had
seen the cancer affected from a distance, and heard about it in hushed
voices. As it is, people did not have courage / confidence to talk freely
about it.
The word or name cancer is dreaded by almost everyone. It brings
out a scary and frightful picture. So much so, that it is another name
for death or life’s end. The term is an anathema, and strikes fear in the
minds of people. Not just this. It is compared to issue of a warrant for
life’s last journey, probably an RAC rail ticket to death as destination.
No treatment is said to cure it, no hospital tells when a cancer patient
will return to normalcy, and nobody says that the destination can be
changed.
Incidentally, many people hesitate, and are even scared to tell or
utter the word cancer, not only by those who are concerned with
or affected, but also by common people. I believe, it is an indicator
that the life of cancer patients gets just extinguished prematurely or
faster. In the course of last three decades, I had known that snake bites
and heart attacks used to cause instant death or persons affected by
such attacks do not survive. Today, while snake bites are easily treatable,
though not so prevalent, heart attacks are common, and easily treatable
or manageable. But regardless of cancer survivors, the fear of imminent
death arising from the dreadful cancer lingers on.
Not merely that. Cancer name or term has now become synonymous
with, or is attributed to, any catastrophe or disaster or dangerous trends
in the region or in the society by political leaders, high society people
and even intellectuals, which in reality is neither appropriate nor fair. I
cannot reconcile to such a view or perception that the word cancer is
so hated or feared, and has become a taboo.
Looking back, I had vaguely heard of my mother’s younger sister and elder
brother who stayed in their villages having cancer symptoms, but did not know
14 The MANTRA for Winning Cancer Battle
much about the disease. In course of time, I came to know that they fought the
cancer battle, and have eventually survived.
However, I had known personally my close colleague Arvind Kulkarni’s
aunt, who had cancer of a very rare kind many years ago. Those days people
thought that the patient must not know that he or she has cancer. But Arvind’s
aunt was a strong willed person. She knew that she had the rarest type of cancer
right from day she was diagnosed.
It was Arvind’s son who while sitting on his aunt’s lap pointed out towards
a ball like growth on her thigh. She had ignored it, but in the course of normal
check up, Dr. Hebbal informed Arvind to get the growth examined. He got his
aunt thoroughly examined, and the tests were done so fast that within two days
it was found and diagnosed as a rare cancer.
Arvind took courage and informed her about this slowly and softly. But the
reaction from his aunt was rather surprising. She responded “Yes, is it cancer ?
Whatever type it is, maybe it will take my life sooner or later. I will live happily,
as long as I am alive, as I have nothing to worry about; she informed Arvind
to take care of his uncle in case the cancer consumed her. She informed everyone
who visited her that she has cancer, and her days are numbered. She assigned
all her family responsibilities to Arvind, and advised him that he was absolutely
free to take any decision about her treatment plan.
The case of Arvind’s aunt was unlike mine. It took about two years
to correctly and finally diagnose that I had cancer. And that happened
only after an ENT Surgeon Dr. Uday Kumar, while examining my ear
condition accidently noticed a lump on my cheek, and enquired about
it. I told him of the FNAC test done by senior Surgeon Dr. Kaulgud at
Dharwad a year ago, but it was finally diagnosed and confirmed that the
growth is benign, and benign only, with advice that there is no cause
for any concern. Dr. Uday Kumar, however, was of the considered view
that it was preferable and advisable to go in for a fresh test.
Incidentally, Arvind’s aunt was finally operated at Dharwad’s Sarvamangala
Hospital. Arvind and I were at the Hospital when the surgery was done, not
knowing how serious was the damage caused by her cancer. When the door of
H.S. Kulkarni 15
OT opened, and Sr. Surgeon Dr. Kulgod came out, followed by a nurse with
a plastic pot carrying the operated and separated flesh portion, and showed the
mass to Arvind and me, it was deep red and some grey black semi-fluid about
three kg mass, and we did not know why so much flesh was removed. Dr.
Kulgod told us that the spread out was so much, and all this mass needed to
be sent to Bangalore for biopsy, to know and confirm the extent to which the
cancer had spread.
Arvind’s aunt was still unconscious, but after a few hours, she gained
her consciousness when smilingly she informed us that the dirt of cancer was
removed, and we need not worry. Great, I thought. Instead of our having to
comfort and counsel her for having confidence and courage, it was she, in her
semi conscious state, who told us not to worry. That reaffirmed my belief how a
strong willed person can make a difference. I must say that she is a brave lady,
who not only came out of cancer, winning the tough battle, and living happily
and free from cancer, with her husband.
All these scenes were coming before my mind’s eye when I was
mechanically driving back home from Dr. Udaya Kumar’s Clinic.
Whom and how I should inform first ? Arati or Nalu ? Not knowing
how they would react ? I decided to stop the vehicle for a moment
on the road and think. I pulled the vehicle to one side. Tried to collect
myself, but could not imagine what their response or reaction will be
like. Eventually, I decided to talk to Arati first, as she was comparatively
a strong willed person like me. I called Arati’s number from my mobile.
Hello Beta, how are you ?
OK Daddy, was the response from her.
Did you all have your lunch ?
Yes, daddy, kids are upstairs, and Vijay has gone out on some work.
Arati, I was with Dr. Uday Kumar Grampurohit for my ear check
up, and I got a report just today.
What report ! Hope, everything is OK
Yeah !
16 The MANTRA for Winning Cancer Battle
But listen.
Listen carefully till I complete.
She was a little perturbed as to why I was talking like this, but said
yes in silent mode.
Listen Beta, I was coming here for more than a week now for my
audiogram and hearing test.
Is the audiogram OK ?
Yes, but some thing else is wrong slightly
What ?
Incidentally, his wife Dr. Vandana being a Pathologist, was instructed
to take my FNAC test for the growth on the left parotid gland.
She said what ? She was perturbed that something wrong must be
revealing in this pathology test report; maybe, she guessed.
The report says that the lump growth is malignant, and Dr. Uday
tells that I have cancer.
The news may have jolted her as there was stony silence. I said
Hello, Hello repeatedly; but there was no answer. I wanted to make
sure that she is OK.
Then I continued : Beta, suno, I am OK, let us wait and see; you
don’t have to get unnecessarily upset; we can talk about it.
I have so far not informed this to your Mummy. Infact, I am on my
way home; once I reach home, let me see what to do.
Arati said, I am OK Daddy; you take care of yourself, and take care
of Mummy. I will speak to Vijay and come back.
I said OK.
My daughter Arati was the first person after me in our family to
know that I have cancer.
I started the car, and began driving home. The drive in normal
time is about 10 minutes, but this day it looked as though the time had
H.S. Kulkarni 17
stopped, and those ten minutes appeared like an hour.
I reached home, slowly walked up to the door, and half– heartedly
rang the bell. My wife Nalu opened the door.
No sooner I entered our house, and sat down, she first asked me
“What has happened, you took so long to get the report; is the report
is the report
OK, and many questions, but my answer was just silence.
I asked for a glass of water. After giving the glass of water, she said :
Come, it is already too late, have lunch, and we can talk thereafter.
I decided to wait for a while to gauge her mood, and readily agreed
for lunch. Apparently, Arati had not spoken to her in the meantime.
I was also composed and calm. Thus, there was no need to share the
breaking news till our lunch was over. After we finished our lunch, we
went to sit and relax in our room.
I really did not know how to open the subject matter. I could not
imagine how she would react; how she would take it, because she is a
heavy diabetic. I collected myself, took a deep breath and said : Listen
Nalu, I got my report.
She promptly told : For your hearing problem ?
No.
Then ?
It is with regard to the Biopsy and FNAC done for the growth on
my cheek.
You said everything is OK, and you will grow beard if required. If
that is the only thing that makes you happy, you may go ahead.
I said : No, not that; the problem is not of growing beard, but the
lump.
What about it ?
Dr. Udaya Kumar said it is malignant. But I know for certain that
she did not understand the term or word ‘malignant’. I told her again
in a softer tone; the Doctor says it is cancer.
18 The MANTRA for Winning Cancer Battle
I then kept my gaze fixed at her to see her reaction; she was like a
person felled by a hard hitting object, and she was motionless.
There was simply no reaction.
I was worried. Be assured Nalu, everything will be OK I said. I have
spoken to Arati about it, and Vijay was not there. Let’s see.
And to avoid elaboration and discussion on this matter, I told her
that I was very much tired, and would like to lie down.
She understood that I did not want to scare or frighten her by
discussing the subject matter further, and said OK.
But before she uttered the two alphabets O and K, there were tear
drops, one from her right eye, and the other from the left rolled down
on her cheeks, she tried to wipe the tears while walking out of the
room.
I did lie down for some time with my eyes wide open on the bed,
rolled to the right and left, but could not rest.
I heard Nalu speaking to a relative on phone. It appears that was her
brother Kant crying, and told him that I had cancer. Her mother was
also at Dharwad then.
The breaking news was out. It was about 2 pm in the afternoon,
and I was still lying down in my room when the doorbell rang.
My mother-in-law, my brother-in-law, my sister-in-law and a
couple of relatives in Dharwad arrived. They were in our drawing
room, all of them being silent, and not uttering a word.
In just five minutes time, my domestic help came in to tell me to
come to the drawing room, as many of our relatives had come to see
me. But I thought I’ll go there after a while. I did not want to go there
instantly, as they would all start crying, and say so many things, which
would make me feel isolated, and bring about negative thoughts.
I waited for the sombre situation to quieten, with the initial crying
getting over, and then only I would go there. After about half an hour
H.S. Kulkarni 19
or so, I decided to meet them. Changed my Kurta, and went into the
drawing room. Then, I pulled my plastic chair, and sat in the middle, so
that I could see all of them, and they may also see me eye to eye.
It was obvious that all of those who had come looked grim and
downcast. Before saying anything, my brother-in-law broke down and
started crying. I had to console him first. I, therefore, told him : “Don’t
cry. What has happened ? Everything will be OK, and I will fight. And
I am not going to die; so, don’t worry”. There was again silence, no
one said anything, because no one knew what to say. I had virtually
taken charge of the situation courageously, and assuring them that I
was going to fight the battle, come what may. It was my readiness to
face the most difficult situation with grit and determination that had
the effect of calming and assuring the lot of relatives assembled then.
They all knew that I had faced and handled hostile conditions and
turmoil in my factory life and career with courage and confidence.
I was known for having a never die spirit in whatever risks and
responsibilities I had taken up and executed. It had given me mental
strength and fortitude to overcome challenges and life threatening
situations. Having consoled and reassured all of them that I was ready
to face the difficult and troubled times, they apparently reconciled to
the situation.
It is common and natural in our society for relatives, friends and
known people to turn up at, and come to, the places of the cancer
affected or to hospitals where cancer patients are being treated, and
console them or offer sympathies. On the contrary, here was a situation,
where I had to counsel and comfort all of those who had come to see
me. Thus, it turned out to be an unusual scenario.
Nalu and the remaining relatives were talking for some time after
I left, and I could hear her telling them that whatever is going to
happen will happen, and there is no point in crying about it. She said
that we should handle the situation carefully, while being ready to face
whatever comes.
20 The MANTRA for Winning Cancer Battle
That is what I wanted to hear from her. She had indeed mustered
courage, and braced herself for addressing the predicament and
challenge in which I was placed. I sensed that Nalu had become ready
for the next action plan. I felt stronger in my resolve to overcome the
cancer stigma.
All of them went to their homes after promising and committing to
help Nalini, saying that she could contact them for help anytime. This
was her family support that gave her strength, and I also felt reassured.
Then, as she walked into the bedroom, she said “I’ll make some tea,
it is already 4 pm. I hope you will have a cup of tea” to which I agreed.
Whereupon I asked her to sit for a moment. And thankfully
endorsed her balanced response and practical approach. I did appreciate
and commend her acceptance of this huge setback, and regaining
equanimity so quickly.
I thereafter told her that I would like to speak to Arati for the next
step to be taken, and I dialled her number. Hello Daddy ?.
Before talking further, she enquired about Mummy and how she
had taken the disturbing news. I said I must appreciate her shock
absorption easily, and the strength of her mind to take the matter in
her stride.
I realised that both Arati and Nalu were ready to bolster my strength
required to face the difficult situation.
While I tried to talk to Arati further, Vijay pulled the phone from
Arati’s hand in the meantime, and started speaking. Assertively, he said
‘Daddy be ready to come to Bangalore, we are already at Tumkur, and
will be reaching Dharwad by late evening’. I informed about their plan
to Nalu. She was also surprised at the way things were developing so
fast.
By evening, Arati and Vijay had arrived. After the initial exchanges,
Vijay had a detailed look at the report. I told him that the final report
from SDM Hospital was expected the next day, whereas the Lab
Report had indicated malignancy of the lump. They even saw the
benign Biopsy Report made at German Hospital. We decided to leave
for Bangalore the next day early morning after collecting the Biopsy
and FNAC Reports..
That night I spoke to my son Raju who was at New Jersey in
US, and informed him about the onset of cancer. While I felt he was
momentarily taken aback, he took the news in his stride, and told me
to scan and mail the reports to him. He would consult Dr.Anita Desai,
an Oncologist at a Hospital in New Jersey, US, whom he knew.
Next day was 10th August 2011, a day of reckoning ! By 8.30 am,
we all were ready to leave for Bangalore for the ultimate diagnosis. On
our way to Hubli, we reached SDM Hospital, where Vijay met our
Dharwad based Pathologist Dr. Vandana Grampurohit, and collected
the FNAC report.
In the Report, it was noted that the FNAC of left Parotid Swelling
was suggestive of lymphoma or malignant tumour of lymphoid tissues
/ cells, and called as non - Hodgkin’s lymphoma. At last, I came to
know the type of Cancer that was ultimately diagnosed, and is known
by this medical name. I saw the report myself with a sense of disbelief.
For about half an hour I did not utter a word, as I was engrossed in
understanding the report.
Breaking the silence in our car journey, Arati uttered Daddy, “I
had heard that undiagnosed fever remaining for long is indicative
of the affected person nurturing cancer inside !“ If this was true, it
meant that for about a year while I was in Bangalore before shifting
to Dharwad, my body was apparently hosting cancer ! But I told her
that it is well accepted that cancer cells reside in every human body. At
some point of time, they get triggered due to one or several factors, and
start multiplying, which would lead to manifestation of cancer signs
or symptoms. How come the incessant fever that I used to get till the
last week was not regarded or considered as one of the early signs or
symptoms of cancer, when persistent fever is medically recognised as
22 The MANTRA for Winning Cancer Battle
one of the signs of lymphoma cancer ? But, you never know. Ironically,
the one that had suddenly abated or disappeared in a week with the
help of simple medication by Dr. Raikar, was lipoma fat cell.
Annexure I to Part One of this Book, details the signs and
symptoms of cancer, as well as warning signals in certain
types of cancer, which is useful reference material for all those
concerned with, or interested in, cancer.
Seeking 2nd opinion : final diagnosis of
cancer; Eventually, looking for treatment
at Bangalore
J
ust how important is the message or signal “Listen to your
body” ? Though in my case, despite constantly listening
to, prodding and pushing my body, no Doctor could help in
telling me that cancer was residing in me for a long period, or
rather I was hosting it since the time I was getting continuous
and regular fever. It had then remained undiagnosed, but got
resolved on its own.
Finally, I came to know of my having cancer after the FNAC
test carried out by a senior pathologist at Dharwad, who was
attached to SDM Hospital, Hubli. It was then decided that
we go in for a second opinion for our satisfaction. While the
critical importance of early diagnosis for effective treatment of
cancer is well known and emphasised, it is rather unfortunate
that I was finally diagnosed as having cancer after two long
years. As such, I was not in a position to assess whether I was
early or late in being diagnosed as having cancer, and without
knowing its stage. But I decided not to bother further about
this matter.
Chapter 4
Seeking 2nd opinion : final diagnosis of
cancer; Eventually, looking for treatment at Bangalore.
Just how important is the message or signal “Listen to your
body” ? Though in my case, despite constantly listening
to, prodding and pushing my body, no Doctor could help in
telling me that cancer was residing in me for a long period, or
rather I was hosting it since the time I was getting continuous
and regular fever. It had then remained undiagnosed, but got
resolved on its own.
Finally, I came to know of my having cancer after the FNAC
test carried out by a senior pathologist at Dharwad, who was
attached to SDM Hospital, Hubli. It was then decided that
we go in for a second opinion for our satisfaction. While the
critical importance of early diagnosis for effective treatment of
cancer is well known and emphasised, it is rather unfortunate
that I was finally diagnosed as having cancer after two long
years. As such, I was not in a position to assess whether I was
early or late in being diagnosed as having cancer, and without
knowing its stage. But I decided not to bother further about
this matter.
Chapter
Seeking 2nd opinion : final diagnosis of
cancer; Eventually, looking for treatment
at Bangalore
Just how important is the message or signal “Listen to your
body” ? Though in my case, despite constantly listening
to, prodding and pushing my body, no Doctor could help in
telling me that cancer was residing in me for a long period, or
rather I was hosting it since the time I was getting continuous
and regular fever. It had then remained undiagnosed, but got
resolved on its own.
Finally, I came to know of my having cancer after the FNAC
test carried out by a senior pathologist at Dharwad, who was
attached to SDM Hospital, Hubli. It was then decided that
we go in for a second opinion for our satisfaction. While the
critical importance of early diagnosis for effective treatment of
cancer is well known and emphasised, it is rather unfortunate
that I was finally diagnosed as having cancer after two long
years. As such, I was not in a position to assess whether I was
early or late in being diagnosed as having cancer, and without
knowing its stage. But I decided not to bother further about
this matter.
At that moment while on way to Bangalore, I did not know at what
stage my cancer was, or how serious the condition was inside. All that
I could say, having become a cancer case, the lump on my left parotid
area was called as non Hodgkin’s Lymphoma. A wonderful medical
term or name of cancer I had got. What a tongue twister !
I only came to know subsequently that the non Hodgkins
Lymphoma diagnosed in me as cancer was not the same one that Dr.
Kaulgud had observed earlier, upon conducting biopsy of the lumpy
growth in my cheek, and reportedly told us that it was lipoma fat
cell, and benign. Thus, the earlier reported lumpy growth was possibly
misdiagnosed or not diagnosed at all as cancer. On the other hand, the
final and formal diagnosis was arrived at on the basis of FNCA Report
of Dr. Vandana Grampurohit, and duly verified by the SDM Hospital
thereof. It ultimately turned out to be malignancy of the lymphatic
nodes, and called as lymphoma or medically known as non-Hodgkins
Lymphoma.
We were getting down at Davangere for lunch. Every one appeared
to be so much concerned about me, advising me to be careful, and
to move slowly. It was as if a serious accident victim was being
admitted to a Hospital for an emergency condition or when a patient
is discharged from Hospital after major surgery. Instantaneously, Vijay
came to help me getting down from car. Someone pulled a chair for
me, while another relative was helping me to sit. Apparently, it was the
typical sympathetic and sensitive concern for me as a serious patient, all
happening to me in just one day after I was declared a cancer candidate,
though nothing physically or for that matter even emotionally had
changed in me.
I was not prepared for all this, as I was feeling physically alright,
and did not like feigning ill. I did not want anyone to support me
to alight from the car. I was normal, rather feeling fine without any
impact of, or effect from cancer. I always believed and felt being fit
and independent.
H.S. Kulkarni 25
I was naturally confronted in my mind with the question whether
cancer is reversible or curable. I had heard, and I believe, as most
allopathic doctors say that cancer cannot be cured. However, it is
definitely treatable. As in case of diabetes, with all kinds of alternative and
complementary therapies available, one need not fear diabetes; one can
live with diabetes by keeping it under control. There are medicines to
control diabetes; there are special foods for diabetes; there are sugar free
sweets for diabetes; sugar substitutes, food substitutes, etc. With all kinds
of treatment options and methods, medical facilities, complementary
and alternative therapies, diabetes has becoming a friendly disease. So
much so, that you can live with diabetes without fear and worries. I
am strengthened in my belief and understanding that diabetics can live
without compromising in life, going by the example of how my better
half Nalini has been able to manage it. I was, therefore, wondering why
cancer cannot be managed like diabetes.
Unfortunately, the causes of cancer are not clearly known, and
it still remains a mystery. It cannot be said what specific factors or
conditions contribute to the cancer disease. Or, why and how it
occurs ?. But it is commonly believed, and even medically held that
smoking, exposure to hazardous chemicals, pollution and radiation,
genetic factors, etc. contribute to the incidence of cancer. Insofar as I
am concerned, I have been a non-smoker, vegetarian, teetotaller and
a health freak doing exercises since long, maybe for the last over two
decades, though I was not regular and strict in my habits and practices
in the earlier years. Earlier I used to eat paan and supari, but gave them
up after settling down in Dharwad. Apart from the above healthy
habits and practices, I have been used to getting up early morning by
4.30 am, and after wash and freshening do regular Yoga and Pranayama
besides some exercises.
With such reasonably healthy habits and practices, as well as a
regular schedule of work and exercises that I was having, I felt that
I was not a right candidate for hosting the hostile cancer. I was a
wrong address for non-Hodgkin’s lymphoma. Neither did I have any
26 The MANTRA for Winning Cancer Battle
of the common or prevalent symptoms or signs which would facilitate
early detection. But there was no Doctor or Specialist, much less any
authority to tell me how and why I got cancer. That would remain an
unresolved question.
At this point of our journey, we were nearing Bangalore. We halted
for a while at Tumkur, freshened up and had tea. Then, we commenced
the last lap of our road journey. We reached Bangalore around 8.30
pm, but my mind was still wandering and exploring how I should
brace for the eventuality of confronting and befriending the great non-
Hodgkin’s lymphoma. I had decided to take it easy; behave normal
even if the treatment meant torture to my body; not to worry about it,
and also not to be a cause for worry by relatives and others.
Finally, we reached the Villa of Vijay and Arati at Adarsh Vista
Vignan Nagar in Bangalore at about 8.30 pm. Vijay said that let us
not discuss anything that day, and leave it to the next day for deciding
our steps, when Raju was expected to arrive with wife Madhu and
daughter Rhea from New Jersey, US. As scheduled, they arrived late
in the night.
My mind in the morning was preoccupied with the question
of taking some alternate therapy, as modern medicine / allopathy, I
was told, to be very costly, and having side effects, and no individual
insurance cover was available. Moreover, the pain, suffering and side
effects associated with chemotherapy were inevitable, which I had
heard about. Thus, it was just blank as no therapy or system was known
to cure cancer. No answer or assurance was forthcoming.
We were all sitting and sipping coffee in the morning. Impulsively,
Raju and Vijay started telling simultaneously to me : “You do not have
to worry about any matter, money, method and even the duration
of treatment, and I should not even think of suggesting any cheaper
alternative”, as they both had apparently discussed and decided all
matters relating to my cancer treatment. They repeated again that I
need not worry at all, but completely surrender to them. I was further
H.S. Kulkarni 27
told that I did not have choice or freedom in the matter before the
treatment is complete in all respects. Much as I wanted to know or
understand the options and preferences available for effective and
painless therapy for fighting the battle of cancer,
I had just no choice or voice.This modality of surrender or
submission to my son and son-in-law was possibly against my
typical independent thinking and logical approach. However,
realising the gravity of the sensitive situation, I
had to reconcile with the ground realities. Then, acknowledging
their concern as well as assumption of responsibility, I conceded and
confided to them; and readily gave in. Meantime, I switched off the
matter from my mind, and asked it to rest.
It was felt that we first go to HCG, the acclaimed Cancer Specialist
for a second opinion or double check of what was diagnosed. We thought
of HCG as my brother’s son-in-law Dr. Jagannath Dixit was working as
Onco Surgeon there. We felt that he could arrange for a speedy check up.
When we went to the HCG Cancer Centre on 11th August 2011,
Dr. Dixit did a preliminary check up of the growth in my cheek by
touch and feel method. He then took the slide which we had carried
with us, and gave it for verification by sending me for PET scan to
confirm the diagnosis of non-Hodgkin’s lymphoma, and for marking
the stage of my Cancer. We had to wait in the scan room for Multi
Gated Nuclear Test (Muga Scan), Sugar Test, Blood Pressure and Blood
Reports. By late afternoon my stomach was empty, and I was ready for
taking PET scan, which was done quickly.
It was then confirmed that I have been diagnosed with cancer, and
it is non-Hodgkins lymphoma, as per the Lab Reports verified at SDM
Hospital.
Meantime, I was asked if I wished to take a special Blood Test for
checking its compatibility with Rituximab Mabthera Chemo Drug. If
my report was going to be positive, I was told that I could be considered
lucky, as Mabthera enhances the efficacy of Chemotherapy. I took the
said test, and the report was positive.
28 The MANTRA for Winning Cancer Battle
The slide report verification confirmed the presence of malignancy
leading to the diagnosis of my cancer as non - Hodgkin’s lymphoma.
While the Report from Muga Scan was OK, the Pet Scan report said
something. This Report was so much technical and detailed that I did
not understand. We had to wait for the doctor to explain. With this
report, we went to Dr. Dixit, who confirmed that the evaluation at
HCG concurred with the report of the Pathologist attached to SDM
Hospital.
Next day we reached HCG for a discussion on the status of my
cancer condition and plan of treatment. The HCG Medical Team of
Oncologists led by Chairman Dr. B.S. Ajay Kumar, called us at about
4.00 pm at their Conference Room in Tower 3, and we were greeted
by him, Dr. Dixit and Dr. Radhey Shyam. Dr. Dixit and Dr. Ajay
Kumar told me that looking at the prognosis of my cancer condition,
they assured that it is treatable and manageable. They informed me
of the Protocol for Chemotherapy treatment, and estimated that 6
Chemo Cycles will be administered at 21 days interval from the first
Chemo. Accordingly, they gave me the Protocol for the 1st Chemo
as under :
Rituximab ------------------100 mg
Cyclophosphamide ----------100 mg
Vincristine ------------------2 mg
Adriamycin------------------70 mg
I was informed with graphics that my cancer was at Stage III A.
Understanding Cancer Stage, and the Staging of Cancer
I was, however, curious to know how this staging was done, and
asked Dr. Ajay Kumar to tell me. Dr. Ajay Kumar explained the staging
of cancer in detail. He told that for the staging purposes, the torso is
divided into 4 parts, and while a vertical line passing from the middle of
our forehead is drawn till the naval, a horizontal line at the heart level
is drawn which would intersect with the earlier line at the midpoint.
H.S. Kulkarni 29
If the cancer spread is within one sector of the overall area, then it is
Stage I; if the spread is in two adjacent sectors, it is Stage II; when it
is spread to the third sector of the lower half, then it is Stage III, and
finally with cancer spreading or metastasizing to other organs, it is
Stage IV and beyond.
To my query as to how much time would be given for enabling
me to go in for the Chemo, I was put to complete ease. Dr. Ajay
Kumar smilingly told that there was no hurry. I was free to start
taking the Chemo from the next day or the next week or the next
month. He assured me that I was in the best hands, and they would
take complete care of me. I was also told that if I so desired, I was
free to take another opinion in the matter, and that for my cancer
condition, the treatment and the Chemo protocol in any Cancer
Hospital would be the same.
That very night Raju sent the Report along with the Chemo
protocol to the US Oncologist Dr. Anita Desai. She confirmed the
cancer diagnosis and said the protocol was Okay.
As a last resort, we went to Manipal Hospital the next day to see our
relative Dr. Mohan Badgandi, who put us to another known Medical
Oncologist Dr. Purna Patil for arriving at a final decision on my
cancer status. Dr. Purna Patil checked the reports and the prescribed
protocol, apart from physically checking my neck, shoulder and back
for any swelling or pain. Looking again at the Reports, she said that
the cancer had spread to many areas (i.e., metastasized) through blood,
and the Stage III A Cancer had to be treated as fast as possible.
As we returned home and sat at the dinner table, Vijay, Raju and
Arati asked me if it was OK with the proposed line of treatment,
though I was free to decide which Hospital I would like to go for
Chemotherapy. I said I would prefer to be treated at HCG, because I
felt at ease and assured. The next question was when do we go for the
treatment without losing further time. Understanding the action plan,
I told Vijay that I would like to go to Dharwad for a day to bring some
clothes to wear, and other essential things for enabling us to remain in
Bangalore for my treatment.
Raju, Nalu and I decided to fly to Dharwad the next day morning.
We reached Dharwad in the afternoon. As I was entering my home
‘Aashraya’, I became emotional and nostalgic of home and its
environment, not knowing when I would return. Nalu got busy with
packing as many clothes and things as required for our stay duration
of about 6 months. I also decided to have my normal haircut. We were
ready with sufficient clothes and things packed, and took the flight
back to Bangalore the next day to be ready to face the cancer battle.
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30 The MANTRA for Winning Cancer Battle.
The POSTING OF THIS BOOK IS TAKEN IN NEXT "POST 'B'"
Everybody loves his life, likewise it was my wish to write everything about my life before my marriage and record it. But, where can I keep it? Thanks to Google.
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Question on your Health from surgical oncology Free Answers from Govt Award Winner in Surgical Oncology Dr.K.S.Gopinath.,MD.,FRCS ( England)